Child and Youth Cystic Fibrosis Clinical Network

The Cystic Fibrosis Clinical Network was developed in 2014 and transitioned to the Respiratory and Sleep Clinical Network in July 2023.

This Clinical Network (CN) has been supporting multidisciplinary teams working across primary, secondary and tertiary services, to deliver best practice care in the treatment of cystic fibrosis. The network worked closely with Cystic Fibrosis NZ.

A number of workstreams completed the following projects:

Cystic Fibrosis information for newly diagnosed infants

Additional information about newly diagnosed Cystic Fibrosis can be found on the Cystic Fibrosis NZ website:

Cystic Fibrosis Clinical Guidance

All guidelines on Cystic Fibrosis have been made available on the Starship Website. Please see to search for the guidelines you want, which include:

Infection control practices for children and young people with Cystic Fibrosis.

The infection Control recommendations can be found on the Starship website.

The goal of these recommendations is to reduce the risk of transmission and acquisition of CF pathogens between individuals, while recognising that the risk is unlikely ever to be minimised to zero.

If you would like to contact us for further information, please email

For further information on PSNZ / MoH Clinical Network development, please contact Clinical Networks Support Manager, Karyn Sanson,