Starship Long Term Ventilation Pathway

Welcome to the Starship Life Support Long Term Ventilation (LTV) Pathway

Having a child on home ventilation has many implications for your family. You will be pleased and relieved that your child can breathe and is working towards getting home from hospital. However, you may experience grief brought about as a result of change in lifestyle, restrictions or even changes in the dreams and goals you held for your child.

Some people can feel overwhelmed by the things they will need to learn, however you have a healthcare team to help and support you. We understand that this is a big responsibility. It is important that you understand and feel happy about providing all aspects of care for your child before you leave the hospital.

Here are some resources we have created for our families:

• Welcome

• My Health Passport

• An Introduction to Home Ventilation

• Optimising Wellbeing and Development

• Breathing and Ventilation

• User Guide to your Child's Home Ventilator

• How do I set up the Astral Breathing Circuits?

• Cleaning and Maintenance

• Problem Solving your Child's Home Ventilator

• How to Problem Solve your Child's Humidifier

• User Guide to your Child's Home Suction Unit

• User Guide to your Child's Oximeter

• Speaking valves

• Nebuliser

• When your Child is unwell

• Being prepared

• Setting up your Child's ventilator at home

• Brothers and Sisters

• Getting Around

• Tips for daily life

• Caregiver Education Plan